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Organization:
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Barth Syndrome Foundation of Canada - Georgetown
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Address:
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162 Guelph St, Suite 115 L7G 4L2
Georgetown, ON
L7G 5X7
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Map
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Service Description:
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A volunteer-based, charitable organization that works to find treatments, causes and a cure for Barth syndrome (BTHS)
On-going programs include:
Science and Research
- participation in helping to fund approved Barth syndrome specific research in Canada and worldwide
Health Counselling
- providing affected individuals and their families with information and emotional support to improve quality of life, advance treatments, and find a cure for Barth syndrome
Health Information Activities
- awareness program for the medical community and the general public providing information about Barth syndrome, diagnostic alternatives, and treatments to help patients get care unique to Barth syndrome
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Eligibility / Target Population:
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Individuals and families affected by Barth Syndrome and those supporting the foundation's aims
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